Monday, December 7, 2009

Its been a little while since I have updated my blog. I could say that it's because I have been busy, which I have, yet truly it is because I fell into a "non-blogging" funk. Sure, I had two kids in school, one who is in the process of getting an individualized education plan (IEP), I also had a lost and then found dog, lots of paper work due to moving from ID to WA, and a couple of ski days. Yet, really, if I had wanted to blog I would have. Today, though, something motivated me to catch up in my blogging world.

Blogging to me represents what is great about community. While being in my own community I can join Asperger's support groups, or even go to the UW for my kids, yet I don't like to be pinned down to any one group, set of friends, or even a particular mood that allows me to make and sustain a friendship. I have gone into hiding, basically, to everyone but my family. Facebook friends can find me, and maybe I will end up hanging out one day soon, yet I feel better just being alone in my own routine, working on my family, writing, and helping my kids in school. Okay, to go back to the reason I felt like blogging, oh yeah, on Oprah today she brought back the CA family that has the 9 year old schizophrenic daughter. I feel for that family and little girl, because usually schizophrenia doesn't serface until middle age or at least the teen-aged years for the most part.

That show really made me think. I have heard that there are many similarities in disorders such as Schizophrenia, Bi-Polar, OCD, to Autism Spectrum Disorders such as Asperger's or "high functioning autism". Having lived my life with Asperger's Disorder, I truly can understand such similarities. The remaining blog is about how I found this out...

As a child I lived in my own world. Sensory issues bothered me greatly, yet when I could be alone out on the 10 acres where I grew up, I was truly in another world. This world was beyond what one could call imagination. I was so engrossed in this "other world" of forest, fairies, adventures, and imaginary play, that I lived it. Every day was the same thing, it was as if I was a part of this world, yet I knew the difference.

Still, my decisions in engaging in such long hours of imaginative play, sometimes brought negative consequences. Consequences that started small, yet moved to bigger problems as I grew older. What was first fun imaginative play became time consuming obsessive play, in which I had to be in my alternate reality. It seemed that hours and days were lost in such play. My ability to interact with others seemed to only be able to occur when my imagination was involved, dragging them into my imaginative world, and withdrawl pains if I was forced to be in the real world. How true this became when I was a teenager and my imagination turned to pain, as I couldn't really have what I wanted and obsessed about. Reality for me was a mix of imagination and real life, whereby in order to have some sort of a social life, I had to keep my "other world" secret. I wasn't ever encouraged to explore my imagination in my family, yet my first grade teacher helped to bring it out when I won my chance as an author. I won the "young author" award and was sent to a young writers conference. Sadly, no other teachers encouraged my writing, and therefore I didn't continue writing until I became an adult.

So where was I? Oh, I was explaining why these other disorders are so similar to ASD's. As a woman with Asperger's I struggle with obsessive compulsive disorder, I struggle with imagination vs. reality, wants vs. needs, and how to maintain a friendship. I can't control certain things that I am thinking, what I mean I can't always keep what I am thinking to myself. If you spend any fair amount of time with me, you will discover that you will generally hear every detail about my life within the first couple of hours. If someone says something that I don't agree with it, I will literally feel as if I will explode until I set them straight. I can only call or talk to friends at certain times, say after a strong cup of coffee. Otherwise I can't fathom the idea of being social. I feel paranoid often. All of high school I felt as if everyone was pointing at me saying I was a loser. If I say the wrong thing, or God forbid speak too soon, or shoot out an angry e-mail; well, I will obsess about it for days and not be able to calm the anxiety. It sucks! I hate it, however, despite years of hating myself, I have learned to love myself. How else could I understand my world, or my children, if I didn't learn to love myself and see how God could fill the empty space in my heart.

Finally, God did fill that empty space. I have thousands of bad decsions and situations that I have been in and still can't understand. The one thing that I have learned is that God loves me and fills that need. He has shown me that there is a world of people out there just like me, parents with kids just like mine, and women who have lived a life of hurt because they just "didn't fit in." So, if I say you are my friend and don't take the time to call you or email you, its not because I don't care, its just that I just can't always handle "people". Not specific people, but people in general.

More as I learn more about myself...stay tuned.

6 comments:

Gavin Bollard said...

I can relate to pretty much everything here. I have the same issues with OCD, Fantasy vs Reality etc..

In recent times, I've gained better control over my corrections (though internally I still stew when people say or write the wrong things). I've learned that everyone is entitled to their own opinion and that mine can be as wrong as anyone else's.

I have just as much trouble coping with bad decisions and times when I've been a little too outspoken, too aggressive in conversation or simply give out too much information.

You're right though. The blogging community is a great relief. It's not simply the idea that our thoughts are being read, it's that our experiences are being shared.

Karen K. said...

Thank you so much for sharing so much of yourself. I have recently started blogging about my life as an Aspie woman and I'm finding it rather therapeutic sharing with "the world", that which I had bottled inside for so many years.

We appear to share many parallels in our journey. It's both refreshing and yet odd to find someone whose writing I can relate to so much!

Come As You Are!
Let Your Light Shine! :-)
Karen / Aspierations

Jennifer said...

oh my goodness. i had no idea that there were others like me.
my 3 year old son was diagnosed ASD and I've been researching - I've always suspected I might be Asperger's, but never really looked into it until this week. I could have written this blog post, word for word.
This gives me a lot to think about...
thank you for blogging. I'm happy to have come across your blog today.

Jennifer said...
This comment has been removed by the author.
Artsiejavagirl said...

sans the paranoia this is me...well as I sti and type I suppose in social setting i still feel as if i did as a child like the outsider in a room and yes ok I guess I too feel as if they are mentally pointing at me as the oddball in the room. thank you for conveying this so nicely...it is nice to find others who are just like me.

Artsiejavagirl said...

you conveyed this so nicely via words. it is very nice to find others who truly understand what I feel like and often struggle with...it's nice to find somewhere I can finally fit in. Thank you for sharing!!!!